Lived Experience Leadership Programme Resource Pack

Chair’s Welcome

I am delighted to introduce this Resource Pack following a successful programme pilot which concluded in June 2024.

Firstly, I would like to thank all the charity participants for their time, effort, and enthusiasm to our pan-island Lived Experience Programme Pilot. Without them sharing their learning and exchanging experiences, the programme would not have had the impact it has had. I know that relationships between participating charities are stronger for having participated in this pilot, and they continue to network and share their experience and progress.

I must also thank the speakers from across the Channel Islands and the UK for all their contributions and for their continued support.

Lived experience - Philippa Stahelin

A special thank you to Paula Harriott, who spoke about the importance of Lived Experience at our annual seminars in 2022 and 2023 which started the Foundation’s Lived Experience journey and led to Paula and Jo designing and delivering this programme pilot.

By launching this Resource Pack, we hope it will be of practical help and guidance to the wider charity sector in starting or continuing their own Lived Experience journey.

The Foundation would welcome hearing from charities about their success stories in their work to put lived experience at the heart of their charity.

Philippa Stahelin
October 2024

Lived Experience Leadership Programme Pilot

In September 2023, the Foundation kicked-off its nine month lived experience leadership programme pilot. The purpose of the programme was to build confidence, develop knowledge, and share good practice of engaging with lived experience amongst charity leaders in the Channel Islands. The session topics included:

  • Introduction to trauma informed theory and practice
  • Mapping current practice, self-assessment
  • Preparing a project plan, policies, and resources
  • Safe practice
  • How to avoid exploiting the voice of lived experience and re-traumatisation
  • Co-production
  • Peer support
  • Lived Experience in Governance
  • Volunteering
  • Employment
  • Support
  • Recognition and Reward
  • Evaluation
  • Participatory Storytelling
A man and a woman are walking outdoors on a sunny day, engaged in a conversation.

We were lucky to be joined by some inspirational speakers, including Paula Harriott, who talked about how their own lived experiences have shaped their work and the importance of bringing lived experience into the charity sector.

“It was extremely invaluable to be able to network with so many different organisations managing and experiencing so many different challenges in their field.”

We’re going to keep meeting as a group every six months to continue the all-important conversations around lived experience, as well as developing a Charity Resource Pack for the benefit of the wider sector.

“The ability to come together with a shared passion to produce a service that properly recognises the person at the centre of the service we provide has been wonderful.”

Lived experience event

Interview with Paula Harriott

Paula Harriott, formerly Head of Prisoner Engagement at Prison Reform Trust, speaks about how her own experiences have shaped her career working within prisons, and the social justice sector more widely. Paula works closely with us, initially as the keynote speaker for the Foundation’s annual seminars, and more recently on co-design and delivery of our lived experience leadership programme pilot.

How have your experiences shaped your career?

During my sentence I was able to access support, but I also learned about everything that is problematic with the prison system. I realised the importance of relationships built on mutual respect, of people holding a vision for you when you can’t see one for yourself, and of compassion – all of which there is a deficit of in prison. The day I was released, there was no feedback system. There was an assumption that nothing needed to be improved which shocked me.

I was determined that this experience wouldn’t be in vain, so I made it my job to ensure that continuous improvement through lived experience is interwoven into the DNA of the social justice sector.

Why is lived experience important for charities?

A lot of charities are founded or supported by people who have had a direct proximity to the issue they’re trying to resolve. They can draw on their own experiences to help the most vulnerable in society to thrive and in many ways, this is why they are an essential lifeline to the communities which they serve.

What does the lived experience programme offer?

Having lived experience doesn’t always mean it’s easy to work for a charity. Each service user is different and those with lived experience may face situations that trigger them. The programme gives charities the tools and support to integrate and welcome lived experience into their charity safely. Sometimes we want to do something, but we’re scared it might go wrong. Having this supportive group gives a space to work out how lived experience can benefit a charity. Ultimately, it teaches people how to build a culture of inclusion, continuous learning, and collaboration.

Charity Resource Pack

Following the success of the programme, we have compiled a Charity Resource Pack for the benefit of the wider sector. Explore all the resources below, most of which can be downloaded and used by your organisation.

Full suite of lived experience resources

Download the full suite of lived experience resources

Session 1.1 Introduction to the Theory of Trauma Informed Practice

Introduction to the theory of trauma informed practice

Session 1.2 A CEO's Experience

CEO’s experience of implementing cultural change and trauma informed practice into their charity

Session 1.3 Cultural Transformation

Cultural transformation

Session 2.1 Getting started at building lived experience leadership

Building lived experience leadership

Session 2.1.1 HO Preparing a Work Plan

Building lived experience leadership – Hand out – Preparing a work plan

Session 2.1.2 HO Sample Lived Experience Involvement Policy

Building lived experience leadership – Hand out – Sample lived experience involvement policy

Session 2.1.3 HO Link to Further Resources

Building lived experience leadership – Hand out – Link to further resources

Lived experience video cover

The Danger of a Single Story – TEDtalk video

Session 3.1 Safe Practice

Safe practise

Session 3.1.1 HO Lived Experience Survey Questions

Safe practise – Hand out – Lived experience staff survey questions

Session 3.2 Avoid exploiting lived experience and re-traumatisation

Avoiding exploiting lived experience and re-traumatisation

Session 4 Introduction to co-production

Introduction to co-production

Session 4.1 HO Co-Production Workbook

Introduction to co-production – Hand out – Co-production workbook

Session 4.2 HO Co-Production Framework

Introduction to co-production – Hand out – A co-production framework for Jersey’s mental health services

Session 4.3 HO Co-Production Toolkit

Introduction to co-production – Hand out – A co-production toolkit

Session 4.4 HO A Co-production Framework A reflective case study

Introduction to co-production – Hand out – A co-production framework: A reflective case study

Session 5.1 Peer Support

Peer support

Session 5.1.1 HO The eight core principles of peer support

Peer support – Hand out – The eight core principles of peer support

Session 5.2 Lived Experience in Governance

Lived experience in governance

Session 6.1 A Volunteer's Journey & Transition from Volunteer to Employee

A volunteer’s journey

Session 6.2 Trauma Informed Practice and Employing People with Lived Experience

Trauma informed practice and employing people with lived experience

Session 6.2.1 HO Lived Experience Leadership Programme - RLP

Trauma informed practice and employing people with lived experience – Hand out – Resilience Learning Partnership

Session 7.1 Support - My Story

Support: My story

Session 7.1.1 HO Disability Language

Support: My story – Hand out – The language of disability

Session 7.2 Recognition and Reward

Recognition and reward

Session 8 Evaluation

Evaluation

Session 8.1 HO Logic Model

Evaluation – Hand out – Logic model

Session 8.2 HO Optimism Test

Evaluation – Hand out – Test your optimism

Session 8.3 HO Perceived Stress Scale

Evaluation – Hand out – Perceived stress scale

Session 9 Participatory Storytelling

Participating storytelling

Lived experience case studies

Five people stand in front of the Sanctuary Trust. They are smiling at the camera.

Sanctuary Trust